Multiple Sclerosis

Multiple Sclerosis Button You will notice the addition of the Multiple Sclerosis button in my advertising area, I am in no way affiliated with them; however, I strongly advocate donating if you are able.

I support the National Multiple Sclerosis Society because some nine years ago my mom received her diagnosis of multiple sclerosis after becoming paralyzed on her entire left side. Thankfully my mom regained sensation; however, she was given the label of “multiple sclerosis.” I think secretly she was glad to have a reason, a tangible reason, for the things that she knew were wrong but were labeled by others as sheer clumsiness, forgetfulness or accidents, but it didn’t make her diagnosis easier. There are bad days and good days with multiple sclerosis and depending on your diagnosis: Relapsing-Remitting

you can have more good days than bad or more bad days than good. My mom is fortunate enough to have more good days than bad and with her Interferon injections now bumped to three smaller doses weekly as opposed to a larger once a week dose she seems to tolerate it a lot better than before and the progression of her MS is slowed.

From the media and word of mouth information about MS that is passed around many people are under the impression that it is a death sentence, but the truth of the matter is that MS presents differently in everyone who has the disease and while it is considered a degenerative disease it is an extremely severe case that shortens the lifespan.

The initial diagnosis of MS can often come as a shock to the newly diagnosed and instill fear or it can come as a relief in the sense that there is now a reason for all those little things that drove you crazy and some days actually made you feel insane. For my mom it was a little of both but now, years later,t MS has simply become a part of our lives, as a family we prompt mom to take her meds when she is being obstinate and as a daughter I overlook the days when she calls me three times to tell me the same piece of news each time.

As a daughter of a mother with MS I won’t say it’s hard because it’s not really, there is definitely the wish that my mom had a “normal” life and that there wasn’t so much pressure on my newly unemployed dad (if we count February as new) to find another job to provide her with the health care she so desperately needs but they cannot afford, but it’s not hard, it is difficult. Being a daughter of a mother with MS is difficult because I am my mom’s mom now and at 28 that is a hell of a thing to take on, it is not the overlooking repeated phone calls and stories, nor is it the taking care of her on bad days, the difficulty that comes with being a daughter of a mother with MS is that if I don’t make a financial success of myself my dad will work himself in to a grave and my parents who spent their lives struggling to give their four children everything will have no time to enjoy their time together now the four of us have grown. This is what is difficult about being the daughter of a mother with MS.

To find out more about multiple sclerosis visit the National MS Society

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3 Responses to “Multiple Sclerosis”

  1. 1
    Susan says:

    I was diagnosed in 1980 with MS. I fully understand the good and bad days. I also have a younger brother with MS.

    While I wasn’t happy with the diagnosis it was a big relief to find out the symptoms weren’t all in my head or something terminal.

    I know that MS affects each person differently so I can understand the frustration in dealing with it. I am back in the relapsing-remitting phase.

    Give your Mom (& Dad!) a hug for me.

    • Amy says:

      Thank you Susan, it is a hard disease to live with both as an individual and as a family but there are certainly small blessings such as the fact that Mum doesn’t have the most severe form of MS. Things could always be much worse and we certainly try to focus on that. Thank you so much for your hugs, hugs are always appreciated – give yourself a big one from us too 🙂

  2. 2
    yefi says:

    my cousin was diagnosed with this in 1995 and it really saddens me to see him suffer. thanks for bringing attention to such a pivotal health issue.

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